Venus Williams Talks About Her Sjogren’s Syndrome

Venus Williams is still trying to live a normal life after being diagnosed with Sjorgren’s syndrome, a year after she carried the Olympic torch through the streets of London, but she had to make several adjustments in order to manage her symptoms.

She once again stood up for all patients by appearing on Katie Couric’s daytime TV show “Katie” and talked about her recent withdrawal from Wimbledon due to injury.

“I have to be careful of how much I do now,” Venus said. Williams explained that it takes her more time to recover and that’s something she has to be ok with.

Early diagnosis and treatment are important for preventing complications with Sjogren’s. Unfortunately, reaching a diagnosis is often difficult and has been found to take an average of over 4.7, which is why in 2012 the SSF launched a 5-Year Breakthrough Goal:

“To shorten the time to diagnose Sjogren’s by 50% in 5 years!”

Venus opened up to Katie about her struggle with being diagnosed saying, “When you’re so tired it’s hard to explain but the quality of your life goes down. I’d go to the doctor and say I don’t feel good and they didn’t know why.”

After enthusiastically shooting down rumors about retiring, Venus added that she sees the present as her chance to get better and finally understand why she didn’t feel well before being diagnosed. Venus shows her courage by sharing her story as a way to help other patients. That is why the Foundation is thrilled to have her as the Honorary Chairperson of our Carroll Petrie Foundation Sjogren’s Awareness Ambassador Program.

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